National Post - Ryan Painter: How bureaucrats almost stopped B.C. from saving a child's life

A 10-year-old girl with a terminal disease was almost cut off from her life-extending medication — all because politicians forgot their role

The following was published as a Special to National Post on August 5, 2025.

Ten year-old Charleigh Pollock is the only child in B.C. with Batten Disease, a rare neurodegenerative disorder. Photo by Handout

In British Columbia, at least 10 members of the province’s expensive drugs for rare diseases (EDRD) committee have resigned, not because the governme…